Mayo people living with dementia invited to share their experiences

The Alzheimer Society of Ireland (The ASI) is inviting people living with dementia and family carers to take part in its 2026 Experience of Dementia in Ireland survey.

This year’s survey explores the services people use, their health and wellbeing, and the day-to-day experiences that shape life with dementia. It also looks at community support and the impact of the cost of living. The ASI is particularly keen to hear directly from people living with dementia, alongside the experiences of family carers.

Family carer Tony McIntyre, who lives in Dublin, is encouraging people to share their experiences. “When you’ve met one person with dementia, you’ve met one person with dementia – everyone’s journey is different. That’s why it’s so important that people share their own experience. By taking part in this survey, you’re helping to make sure those real, human stories are heard. Your voice can make a difference to others living with dementia,” says Tony, who cares for his wife Mary, who lives with Alzheimer’s disease.

Dr. Laura O’Philbin, Research and Policy Manager at The ASI, said: “Every person’s experience of dementia is unique, and this survey gives us a meaningful way to capture those realities. It's especially important that we hear directly from people living with dementia, alongside the experiences of family carers. The insights gathered will directly shape our work for the years ahead and help us improve supports for families.”

Two surveys are available, one for people living with dementia and one for family carers or supporters. You can take part online here, or by phoning 1800 341 341 to request a call back from the research team. People can also request a paper copy to post and forms are available by contacting 1800 341 341 or by emailing survey@alzheimer.ie. A stamped addressed envelope will be provided.

Anyone living with any form of dementia, and adults aged 18 and over who provide unpaid support, including family members, friends, or neighbours are invited to take part in the survey.

Paid care professionals should not complete the survey unless they also provide unpaid care to a loved one.